Thank you! In 2021 Bloody Long Walkers and their Sponsors helped the Mito Foundation deliver vital research and services, including:
Hope for future families
1 MILESTONE legislation passed to allow eligible Australian families to have children without passing on the devastating effects of mito. The Mitochondrial Donation Law Reform (Maeve’s Law) Bill passed through the House of Representatives in December 2021 and the Senate in March 2022 with a convincing majority of votes.
Improved access to medical care
$1.25 million in funding was committed to 14 cutting edge research projects, clinical trials and fellowships striving to improve diagnosis and seek effective treatments and cures.
Reduced anxiety through dedicated care
122 families received help with tailored advice, care plans and referrals through the Patient Pathways Program. 89% reported a reduction in anxiety since joining the program.
Patient Care Standards
19 mito experts collaborated to publish the first Australian Patient Care Standards to help people with mito access the best care to improve their quality of life and achieve better health outcomes.
127 GPs completed the Maybe it’s Mito educational module. Earlier detection of mito and increased rates of diagnosis will help thousands of Australians by giving them earlier access to specialist care.
Increased patient knowledge
20 Mito Information Days and Mito Connect Calls helped families all over Australia to build confidence and knowledge to manage their journey with mito.
Supportive networks to reduce isolation
44 Mito Meet-ups across Australia helped people impacted by mito to reduce their sense of isolation and improve mental health and wellbeing.
Greater public understanding of mito
6.8 million people reached by 343 media articles raising awareness and knowledge of mito and mitochondrial donation amongst the Australian public.
Mito Registry Growth
22% growth in the Mito Registry and 4 patient studies offered to eligible Australians to help improve health outcomes.