Mitochondrial disease (mito) is a debilitating genetic disorder that robs the body’s cells of energy, causing multiple organ dysfunction or failure and potentially death. The harsh facts:
- Mito affects 1 in 5000 people, making it the second most commonly diagnosed, serious genetic disease after cystic fibrosis
- One in 200 people, or more than 120,000 Australians, may carry genetic mutations that put them at risk for developing mito or other related symptoms such as diabetes, deafness or seizures during their lifetimes
- There are many forms of mitochondrial disease; it is highly complex and can affect anyone of any age
- There are no cures and few effective treatments
This is why The Bloody Long Walk is so important. Not only does the event raise awareness of this debilitating disease, it also raises vital funds to enable much-needed support to patients and their families and essential research into the prevention, diagnosis, treatment and cure of mitochondrial disorders.
The Bloody Long Walk is owned and operated by the Mito Foundation.
Visit mito.org.au for more information about mito.
Noah’s favourite thing is to make people laugh, with Star Wars coming a close second! But behind his gorgeous smile, Noah bravely fights mito. In his nine short years, he has undergone countless medical procedures. He has had multiple stroke-like episodes, which occur without warning, each one causing significant brain damage.
Despite being fed by a tube and having to rely on his wheelchair, Noah is determined to live life to the full. Ask him how he feels and he says “I choose to be happy.”
“He’s my world, all I want is to find a cure for my boy.” – Kat, Noah’s mum, will take on The Bloody Long Walk for the fourth time.
Register today to walk 35km and help find a cure for mito!